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Building Hope in Port St. Lucie, Florida... New York Kids Get A Chance At Life... The Lucky Winner Gets An American Dream Home!

By Anonymous



August 27, 2004 -- Every parents worst nightmare has come true for two Long island families. 7 year old Nichole O'Connor was diagnosed with a malignant brain cancer in November 2003. Tyler and Spencer Poole ages 5 and 3 respectively, were diagnosed in summer and fall 2003, with the most common inherited lethal disorder in children, Duchenne Muscular Dystrophy.

A generous home building company in Port St. Lucie, Florida has donated the American dream...a beautiful 4 bedroom 3 bath home complete with Lanai and all the upgrades that CBS contruction could furnish.

Moved by the sadness of the stories of these terminally ill children, CBS construction in conjunction with Great Bay Homes, Inc. have arranged a raffle to raise money for research for treatments and cures for these horrid diseases. Nicole Poole, mother of Tyler and Spencer said that the DMD diagnosis of her two little boys is "Every parents worst nightmare. It's simply unthinkable that in this day in age, a cure for Muscular Dystrophy has not been created." The fact is that Parent Project Muscular Dystrophy, a non-profit grassroots organization based in Ohio has grabbed the ball and is running with it to researchers worldwide. Nicole states "They funnel money to the most promising research facilities, not fancy cars, offices or fat director pay checks. We are hoping that people will take a second look at where they put their donation dollars and then give us a second look, too."

"Hopefully, people will be attracted to our house raffle in Port St. Lucie, Florida," Nicole said. She added, "I wish for people to know that 1 in 3,500 boys worldwide are diagnosed with DMD. It can be inherited but in our case, DMD occured spontaneously, without warning or family history."

Life expectancy for the Poole children is probably not to exceed their late teens or early 20's at best. Nicole used to ask herself what she would do if something aweful happened to her children. Now she asks herself, "What wouldn't I do."

As for the O'connor Family, little Nichole was too sick to be at the ground breaking ceremony in Port St. Lucie and her future remains uncertain. But she exudes incredible bravery though surgery and extensive testing has revealed that her cancer has spread to her spine. Anyone can post an encouraging message to her at www.caring-bridge.org/ny/nicholeoconnor.

Raffles for the spectacular home that CBS Construction and Great Bay Homes, Inc. have so generously donated are available online at www.houseofhopepsl.org or by phone at 1-800-564-6104. 1 ticket for $20.00 or 7 for $100.00. The drawing is to be held on January 13, 2005.





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